Real life stories
We all know that hearing practical advice and coping strategies from other people who are living with dementia is the best kind of help. Dementia Matters in Powys will be collating anecdotes, tips and ideas as they come across them and look forward to receiving your stories too.
There is also a UK-wide project called Dementia Diaries that is bringing together people’s diverse experiences of living with dementia as a series of audio diaries. It serves as a public record and a personal archive that documents the day-to-day lives of people living with dementia, with the aim of prompting a richer dialogue about the varied forms of the condition.
An Insider’s Guide to Dementia has been adapted for Powys from a booklet developed by the Cardiff Memory Team. The booklet has been written by people with dementia and gives their thoughts and feelings after they received their diagnosis. Download it here in English and here in Welsh.
The Dementia Challengers website has been written by carers who openly and generously share their experiences. Read their stories here.
Local Real Life Stories
Dementia Matters in Powys is in the process of filming local people from a number of different perspectives. The filming project encompasses interviews with people with dementia, their carers, partners and families and also volunteers who are working towards making their communities more dementia friendly. Here are a couple of extracts. The first is a brief snippet of the Hwyl Project where an arts therapist has been working on two wards offering therapeutic arts to people with dementia. The second clip is part of a compilation of perspectives and introduces us to Sue who talks about how dementia impacts upon her socially. We shall be adding to these local stories shortly.